Life with a gifted child, a child with autism (who is super smart, too) and a whole lot of craziness :)
Wednesday, December 29, 2010
You guessed it!
Yep, STILL sick!!!
His cough is sounding a little better, and it's a little less frequent. He doesn't have a fever.
But, he's still hacking.
He's finally eating a little more, and is back to his crazy active little self, so there is good improvement.
Hopefully he can get better before school starts again!
Sunday, December 26, 2010
Still. Sick.
JT is currently sleeping... he was up from 2:15 this morning until about 30 minutes ago, so it's actually a good thing he's taking a nap.
Poor little man's fever went nuts on Christmas Day. It took *forever* to get it under 102... it slowly went down after taking both ibuprofen and tylenol - but it took a good hour to get to the 101's, and another hour to get down to the 100's. No lower.
He was running a fever until he was due for his next dose around noon... and nothing. He actually felt cold. Took his temp, perfect.
Coughing a little more, but I'm hoping that he's still following in his sister's footsteps. She's much improved today.. first real day of improvement.
At this rate, we might be healthy by the time he goes back to school... and pray really, really hard that we avoid any and all other cr@p this season!
I'll post some pics of JT's toys in just a bit... despite the fever, he was super cute and had a really good Christmas :)
Poor little man's fever went nuts on Christmas Day. It took *forever* to get it under 102... it slowly went down after taking both ibuprofen and tylenol - but it took a good hour to get to the 101's, and another hour to get down to the 100's. No lower.
He was running a fever until he was due for his next dose around noon... and nothing. He actually felt cold. Took his temp, perfect.
Coughing a little more, but I'm hoping that he's still following in his sister's footsteps. She's much improved today.. first real day of improvement.
At this rate, we might be healthy by the time he goes back to school... and pray really, really hard that we avoid any and all other cr@p this season!
I'll post some pics of JT's toys in just a bit... despite the fever, he was super cute and had a really good Christmas :)
Friday, December 24, 2010
Sick again.
Audrey brought home a nasty bug Monday... since then, she has been a hacking, coughing mess. She was running a low grade fever until today, when it spiked at 101.1. Eep!
JT woke up at 4:30am with the hacking cough. Less than 24 hours after he stopped coughing from the croup. He's running a low-grade fever.
Now I have a fever and body aches.
It looks like a flu strain... cold/cough accompanied by stomach upset.
I hope this passes quickly...
JT woke up at 4:30am with the hacking cough. Less than 24 hours after he stopped coughing from the croup. He's running a low-grade fever.
Now I have a fever and body aches.
It looks like a flu strain... cold/cough accompanied by stomach upset.
I hope this passes quickly...
Sick... AGAIN.
Audrey went to school Monday... I heard a little girl hacking like crazy, and was SO relieved she went into another class. However, it appears Audrey caught the nasty, nasty bug.
AND NOW JT HAS IT.
He had less than 24 hours of no coughing.
This one isn't a bark, it's a hack. Non-productive. Accompanied by fever this time.
UGH!!!!!!!!!!!!!!!!!!!!
It appears this is a variant of the flu. We didn't get our flu shot this year because SO many kids I know personally had side effects (there were actually a few who were sick with a high fever for a few days... just like the flu. We didn't want a reaction that was exactly like the flu...).
So, back at freaking square one. Coughing. Only this time, the added bonus of a fever. He's 3 days behind Audrey, and today she's hanging around 101 before it's time to get another dose of fever reducer.
MERRY CHRISTMAS!!!
AND NOW JT HAS IT.
He had less than 24 hours of no coughing.
This one isn't a bark, it's a hack. Non-productive. Accompanied by fever this time.
UGH!!!!!!!!!!!!!!!!!!!!
It appears this is a variant of the flu. We didn't get our flu shot this year because SO many kids I know personally had side effects (there were actually a few who were sick with a high fever for a few days... just like the flu. We didn't want a reaction that was exactly like the flu...).
So, back at freaking square one. Coughing. Only this time, the added bonus of a fever. He's 3 days behind Audrey, and today she's hanging around 101 before it's time to get another dose of fever reducer.
MERRY CHRISTMAS!!!
Pattycake, pattycake...
After watching this video, JT is now trying to get our cats to play pattycake with him... Hilarious!
Thursday, December 23, 2010
Sick, sick, sick.
Poor Audrey is really sick.
She caught her brother's croup, and right before Christmas, too :(
I will say she's taking full advantage, having mom at her beck and call and getting to sleep with me at night... ice cream and popsicles are fine by her, too.
Fingers crossed we're on the upswing. This is one nasty, nasty cough.
And Audrey is REALLY not a fan of losing her voice.
She caught her brother's croup, and right before Christmas, too :(
I will say she's taking full advantage, having mom at her beck and call and getting to sleep with me at night... ice cream and popsicles are fine by her, too.
Fingers crossed we're on the upswing. This is one nasty, nasty cough.
And Audrey is REALLY not a fan of losing her voice.
"Everybody at home."
JT loves going to school (once he's there especially!).
So... during break, he wants to "Go to school" almost every day. This time, it's compounded by the days he's had to be off to get rid of the nasty cough virus that is *finally* fading (I am knocking on wood frantically at that).
I've had to explain to JT that no one is at school. I tell him "JT, school is closed. Everybody's at home. Miss Michele is at home. Miss Lisa is at home. Miss Kay is at home..." and on and on going through everyone in his class.
JT just came up to me and said, "Mommy, everybody at home. Miss Michele at home. Miss Lisa at home. Miss Kay at home. Timmy at home..." and so on, even through his classmates from last year.
Then he smiled and said, "And JT at home. Sissy at home. Mommy at home."
He was very proud. And I'm super thankful he finally understands that his teachers and classmates don't actually live at school. This will make breaks and weekends MUCH easier!
So... during break, he wants to "Go to school" almost every day. This time, it's compounded by the days he's had to be off to get rid of the nasty cough virus that is *finally* fading (I am knocking on wood frantically at that).
I've had to explain to JT that no one is at school. I tell him "JT, school is closed. Everybody's at home. Miss Michele is at home. Miss Lisa is at home. Miss Kay is at home..." and on and on going through everyone in his class.
JT just came up to me and said, "Mommy, everybody at home. Miss Michele at home. Miss Lisa at home. Miss Kay at home. Timmy at home..." and so on, even through his classmates from last year.
Then he smiled and said, "And JT at home. Sissy at home. Mommy at home."
He was very proud. And I'm super thankful he finally understands that his teachers and classmates don't actually live at school. This will make breaks and weekends MUCH easier!
Wednesday, December 22, 2010
Tuesday, December 21, 2010
Steroids. Ugh.
Prednisolone is apparently the type of steroid that makes JT mad (for lack of a better way to phrase that).
He is back to screaming, yelling, hitting when he doesn't get his way. Not near as bad as last time, but JT is a lot mellower than he used to be.
The good news is he's super hungry, so he's eaten a hot dog and some other random things he hadn't touched in a while (he is asking for these things no less!).
Hopefully he'll be back to baseline soon.
Steroids are the only things that work when he gets this nasty cough, so it's not a decision... but we're always prepared for the anger :P
He is back to screaming, yelling, hitting when he doesn't get his way. Not near as bad as last time, but JT is a lot mellower than he used to be.
The good news is he's super hungry, so he's eaten a hot dog and some other random things he hadn't touched in a while (he is asking for these things no less!).
Hopefully he'll be back to baseline soon.
Steroids are the only things that work when he gets this nasty cough, so it's not a decision... but we're always prepared for the anger :P
Monday, December 20, 2010
Go away, croup
I am so tired of this croup that is plaguing JT. We are going on 2.5 weeks now.
So far it's been 2 trips to Urgent Care (3 counting the one where the dr refused to treat him because he couldn't behave... because he has autism... nice). 1 dose of dextamethasone. Now on prednisolone. (Both of those are steroids). Lots of coughing to the point of puking, sleeping on JT's floor and mommy not sleeping because of the coughing baby. 6 days of missed school.
Audrey was super cough-y from Friday until last night... not sure if she's getting better, fingers crossed.
Croup is no longer welcome in our home.
Stay away from my babies, sick!
So far it's been 2 trips to Urgent Care (3 counting the one where the dr refused to treat him because he couldn't behave... because he has autism... nice). 1 dose of dextamethasone. Now on prednisolone. (Both of those are steroids). Lots of coughing to the point of puking, sleeping on JT's floor and mommy not sleeping because of the coughing baby. 6 days of missed school.
Audrey was super cough-y from Friday until last night... not sure if she's getting better, fingers crossed.
Croup is no longer welcome in our home.
Stay away from my babies, sick!
Sunday, December 19, 2010
Croup, Take 2
Thursday, December 16, 2010
bed
JT smuggled markers to his room two nights ago... we noticed he was colored, but nothing else.
Last night, we went to tuck him in, and could not stop laughing.
He labeled his sheets:
As much as I tried to be stern, I couldn't keep it together. He has pretty good handwriting, and in lowercase letters no less! Plus, what kid labels their bed??? :)
Other funnies: He drew on my hand with a pen yesterday... "MOM". I'm taking it the labeling is going to stick around for a while?
On JT's cat:
Me: JT, what color is Beezy? (Or BZ, as he spells it... she's calico).
JT: (looks up, smiling, at the cat) Rainbow!
Last night, we went to tuck him in, and could not stop laughing.
He labeled his sheets:
As much as I tried to be stern, I couldn't keep it together. He has pretty good handwriting, and in lowercase letters no less! Plus, what kid labels their bed??? :)
Other funnies: He drew on my hand with a pen yesterday... "MOM". I'm taking it the labeling is going to stick around for a while?
On JT's cat:
Me: JT, what color is Beezy? (Or BZ, as he spells it... she's calico).
JT: (looks up, smiling, at the cat) Rainbow!
Sunday, December 12, 2010
Getting over croup...
JT got croup this past week... which ended up going on longer than expected, since a real gem of a doctor refused to treat JT because he wouldn't 'just behave' (hello, autism anyone???).
So, we got the one-dose steroid finally on Wednesday (the first attempt at the urgent care was Sunday), but now the cough is taking longer to fade. Each day is better than the one before, and it's almost gone... thankfully.
JT and I had a great time at home, even if he was coughy and barky. I got lots of snuggles, and giggles, and he wanted me around all the time. I even got to sleep with him in his bed, snuggled up one night. First time ever :) Would've been more awesome under other circumstances, but it was sweet anyway. He tucked me in and told me 'night night' before we both fell asleep. Such a sweetheart.
He managed to work himself up one night to the point he vomited all over his comforter. He was so sad, and said "I so sick" in the most pitiful voice ever. It's the first time he's told us that, acknowledged he didn't feel well.
Our second trip to the doctor wasn't much better, but the new clinic was much more understanding, and caring. While he was screaming 'stop', 'time to go', 'lets go in blue car', etc, he did manage to say 'thank you' to the doctor when prompted.
We did have a few days where he brought an extra comforter to his bed, and told me 'time to go to bed, mommy! Come on, night night time!' - which was pretty funny. He told The Hubs that 'mommy sleep in JT bed'.
Anyway, hooray for recovery, boo for doctors who don't understand how 'autism' would make it impossible for a kid to 'just behave'.
So, we got the one-dose steroid finally on Wednesday (the first attempt at the urgent care was Sunday), but now the cough is taking longer to fade. Each day is better than the one before, and it's almost gone... thankfully.
JT and I had a great time at home, even if he was coughy and barky. I got lots of snuggles, and giggles, and he wanted me around all the time. I even got to sleep with him in his bed, snuggled up one night. First time ever :) Would've been more awesome under other circumstances, but it was sweet anyway. He tucked me in and told me 'night night' before we both fell asleep. Such a sweetheart.
He managed to work himself up one night to the point he vomited all over his comforter. He was so sad, and said "I so sick" in the most pitiful voice ever. It's the first time he's told us that, acknowledged he didn't feel well.
Our second trip to the doctor wasn't much better, but the new clinic was much more understanding, and caring. While he was screaming 'stop', 'time to go', 'lets go in blue car', etc, he did manage to say 'thank you' to the doctor when prompted.
We did have a few days where he brought an extra comforter to his bed, and told me 'time to go to bed, mommy! Come on, night night time!' - which was pretty funny. He told The Hubs that 'mommy sleep in JT bed'.
Anyway, hooray for recovery, boo for doctors who don't understand how 'autism' would make it impossible for a kid to 'just behave'.
Sunday, December 5, 2010
Snow Fun!
It snowed this weekend - craziness!
JT loved it this time... he didn't want to come in at all (he liked it last year, but was done VERY quickly).
Audrey was on the ball, teaching him important things such as how to catch a snowflake on your tongue:
Then JT figured it out himself:
Here's the beautiful snow in our backyard:
JT loved it this time... he didn't want to come in at all (he liked it last year, but was done VERY quickly).
Audrey was on the ball, teaching him important things such as how to catch a snowflake on your tongue:
Then JT figured it out himself:
Here's the beautiful snow in our backyard:
Wednesday, December 1, 2010
JT's birthday.
Today, JT turns 5 years old.
5.
It seems so surreal.
I have a billion things racing through my mind. Our journey here, his life in polaroids playing through my mind...
But what it really comes down to, is that I am thankful.
Some people say that their child having autism gave them a voice. But it's more than that. JT didn't just give me my voice, he has given me the confidence to use that voice.
JT has shown me what living passionately is all about. I now know what it means to live with a purpose, and it's only because of him. Those that say autistic children are lost have not met JT. Not only is JT not lost, but he helped me find myself.
JT has taught me to slow down and enjoy the little things. Many would say 'stop and smell the roses', but we stop and analyze the acorn :) I see things in a different way, I live rather than racing to the next big thing.
I'll admit, the whole 'autism' thing takes me out of my comfort zone a lot. But it has taught me that I can handle anything.
JT has, in his 5 years, changed my life, in a way that it would have never changed before. Some people live their whole life and don't make a difference. In 5 years, he has changed the world for me, for our family, and for many who have met him.
JT is a special kid. He proves that you should never, ever give up hope. That love is more than just a word we say, but something we demonstrate (although him saying it is SO awesome and warms my heart every single time).
JT, I am so proud, and so very blessed to be your mommy. 5 years ago I was given a gift that I could have never guessed would be so wonderful.
Thank you, little man, for just being you. You are so very perfect, and I love you.
5.
It seems so surreal.
I have a billion things racing through my mind. Our journey here, his life in polaroids playing through my mind...
But what it really comes down to, is that I am thankful.
Some people say that their child having autism gave them a voice. But it's more than that. JT didn't just give me my voice, he has given me the confidence to use that voice.
JT has shown me what living passionately is all about. I now know what it means to live with a purpose, and it's only because of him. Those that say autistic children are lost have not met JT. Not only is JT not lost, but he helped me find myself.
JT has taught me to slow down and enjoy the little things. Many would say 'stop and smell the roses', but we stop and analyze the acorn :) I see things in a different way, I live rather than racing to the next big thing.
I'll admit, the whole 'autism' thing takes me out of my comfort zone a lot. But it has taught me that I can handle anything.
JT has, in his 5 years, changed my life, in a way that it would have never changed before. Some people live their whole life and don't make a difference. In 5 years, he has changed the world for me, for our family, and for many who have met him.
JT is a special kid. He proves that you should never, ever give up hope. That love is more than just a word we say, but something we demonstrate (although him saying it is SO awesome and warms my heart every single time).
JT, I am so proud, and so very blessed to be your mommy. 5 years ago I was given a gift that I could have never guessed would be so wonderful.
Thank you, little man, for just being you. You are so very perfect, and I love you.
From The Duzan Family |
From The Duzan Family |
Audrey, the literal thinker
Audrey and I dropped JT off at school, and I got back in the car, ready to take her to school.
Me: "Let's get this show on the road!"
after a minute...
Audrey: "Mom, that would be bad. Your show would get runned over."
Me: (trying not to laugh hysterically) "I didn't mean it like that..."
Audrey: "OH!!! Is it an *expression*? Like break a leg?"
Me: "Yes!"
Audrey: "Oh, okay! 'Cause that would be bad if you really put your show on a road. Maybe not as bad as really breaking a leg, though."
Me: "Let's get this show on the road!"
after a minute...
Audrey: "Mom, that would be bad. Your show would get runned over."
Me: (trying not to laugh hysterically) "I didn't mean it like that..."
Audrey: "OH!!! Is it an *expression*? Like break a leg?"
Me: "Yes!"
Audrey: "Oh, okay! 'Cause that would be bad if you really put your show on a road. Maybe not as bad as really breaking a leg, though."
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