Taken 6/6/2009.
Showing posts with label neurofibroma. Show all posts
Showing posts with label neurofibroma. Show all posts
Sunday, June 7, 2009
Saturday, April 18, 2009
Sunday, March 1, 2009
Yikes!
Time is going by too fast!
This week we have JT's IEP meeting, so he'll probably start school next Monday. I am SO nervous about that!
Then, my pre-op appointment is 3/9 at Vanderbilt, and surgery is on for Friday 3/13. I'm surgery #2, so I get there at 9am and surgery starts at 11am. It's a 5 hour surgery, so I'm a little nervous... Okay, a LOT nervous. But 'Bob' is making me feel SO sick, it is time for him to go!!!
I have been warned that I won't have much function post-op in my right arm. The incision may just be a 'Z' in my armpit - or it may go all the way up to my neck. It depends on if they can get it out using the smaller one. I also got the warning about the possibilities of negative outcomes... There is a vein and an artery on each side of the nerve, so if something happened (which it hasn't before, nor do we expect it to) I could lose my arm. Just about jumped out of my skin when he said that! They know about my morphine allergy, so hopefully no surprises for my nurses this time!!!
JT is counting to 13 (haha - just realized the relation to the paragraph above!), and Audrey has taught herself how to add... JT is still talking like crazy - my current favorite is (of course) Momma and 'Aw, man!' (just like Swiper!).
The Hubs's store did really well for the month of February - just hope that continues!
That's all for now, my hand REALLY hurts now when I type for too long.
Love to all -
Kate
This week we have JT's IEP meeting, so he'll probably start school next Monday. I am SO nervous about that!
Then, my pre-op appointment is 3/9 at Vanderbilt, and surgery is on for Friday 3/13. I'm surgery #2, so I get there at 9am and surgery starts at 11am. It's a 5 hour surgery, so I'm a little nervous... Okay, a LOT nervous. But 'Bob' is making me feel SO sick, it is time for him to go!!!
I have been warned that I won't have much function post-op in my right arm. The incision may just be a 'Z' in my armpit - or it may go all the way up to my neck. It depends on if they can get it out using the smaller one. I also got the warning about the possibilities of negative outcomes... There is a vein and an artery on each side of the nerve, so if something happened (which it hasn't before, nor do we expect it to) I could lose my arm. Just about jumped out of my skin when he said that! They know about my morphine allergy, so hopefully no surprises for my nurses this time!!!
JT is counting to 13 (haha - just realized the relation to the paragraph above!), and Audrey has taught herself how to add... JT is still talking like crazy - my current favorite is (of course) Momma and 'Aw, man!' (just like Swiper!).
The Hubs's store did really well for the month of February - just hope that continues!
That's all for now, my hand REALLY hurts now when I type for too long.
Love to all -
Kate
Wednesday, January 28, 2009
So Much For That!!!
Today I met with one of the best Neurosurgeons in Nashville. (Don't believe me? Here's Dr. Howell's profile - of the Howell-Allen Clinic in Nashville). He was an awesome doctor - I would highly recommend him for anyone who needs a neurosurgeon in the area.
He said that he's not experienced enough with brachial plexus surgery to take this lump out. He insisted it must come out, and was concerned over its growth and new pain.
He promised he would find me the person he would want operating on his brachial plexus. He wants to try Vanderbilt, but mentioned that the surgery might not be in Nashville. He said he would 'have no problem calling across the country to find the right surgeon to do the surgery'.
I guess I didn't realize how complicated this really is. I thought surely this was a common neurosurgery issue, and they would schedule me right in and take it out, no problems (besides maybe some physical therapy, etc).
He's calling me back in the next few days with more information. I'm hoping to get this sucker out soon, but I'm not holding my breath. I swear, nothing is ever simple when it comes to my medical issues!!!
He said that he's not experienced enough with brachial plexus surgery to take this lump out. He insisted it must come out, and was concerned over its growth and new pain.
He promised he would find me the person he would want operating on his brachial plexus. He wants to try Vanderbilt, but mentioned that the surgery might not be in Nashville. He said he would 'have no problem calling across the country to find the right surgeon to do the surgery'.
I guess I didn't realize how complicated this really is. I thought surely this was a common neurosurgery issue, and they would schedule me right in and take it out, no problems (besides maybe some physical therapy, etc).
He's calling me back in the next few days with more information. I'm hoping to get this sucker out soon, but I'm not holding my breath. I swear, nothing is ever simple when it comes to my medical issues!!!
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