We all went today, and we all had a great time - including JT (no joke!). Amazing!
My doctor appointment went okay... She said she believes my 'non-stop' headache is a tension headache... She felt my base of my head (apparently where your muscles come together? I have a horrible memory about some things...) and noted it's severely tight there... My stabby pains in my cheek/jaw/face are neuralgia - the trigeminal nerve. What I hadn't posted on here yet was that my left foot is going numb again like it did a few years back (when MS came up the first time).
From there, she did a few tests, and of course, did my reflex test. Of course, she noted that my reflexes are crazy... And the 'MS' discussion came up again (without me mentioning that it had ever been mentioned before)...
So, she's booking me with a neurologist at Vanderbilt as soon as possible in June (hopefully June 1st). She is recommending a MRI and lumbar puncture to test for MS.
We don't think this is remotely connected to Bob. She felt Bob, and didn't say anything... I told her I don't feel him or even look at him anymore - there's no point... Nothing I can do if he is changing anyway, right? ;-) I prefer to be modestly ignorant.
Anyway... JT was in bed last night, and I asked him for a hug. He then GAVE ME A HUG!!! Then The Hubs came in and handed him his juice, and clear as a bell, JT said 'Tha you'. Mass hysteria in the form of kissing, hugging and yelling 'yay JTmy' ensued (by The Hubs, me and Audrey). Funny the things you take for granted (at least we did with Audrey... We would have never partied like that for a little thank you from her, lol).
Audrey got to go to her friend Ainsley's birthday party at the bowling alley yesterday. I discovered a few things about Audrey... First, she is VERY competitive. Second, she is a pretty good bowler (surprisingly). Sounds like her daddy... She is JUST like The Hubs, actually. Social, funny and LOVES games.
Then there was a tornado in Leiper's Fork. We were driving home, and as we passed under the Natchez Trace, I noticed cars pulled under the overpass... I thought, weirdos... Then I looked up and noticed the beautiful, blue sky in contrast to the horrible, black clouds... That looked like the edge was cut by a razor it was such a perfect line... Yeah, wall cloud. We made it home, and it didn't do anything at our house... One of those crazy moments where you realize it could have gone either way, though.
I do have to share this funny story... We were at the Disney store Friday. This lady was in there with her son, and the Little Mermaid was on the big tv. Her son was fascinated. 'Under the Sea' was blaring, and her son started dancing. She laughs, and goes, 'great song, awful movie'. I looked at the cashier, and we both kind of exchanged this look like, wtf? The cashier (braver than I am) asked her, 'What's so bad about it?'... Get this... She replies, 'Well, it just promotes the woman just give up everything and change everything about herself for the man.' Lest you think it ends there... 'I mean, she had it all great in mermaid-world, and now she's picking up some guy's underwear on land.'
I almost fell over... What?!?!
Plus, anyone who's watched the movie knows Ariel wanted to have legs WAAAAY before Eric!
Showing posts with label church. Show all posts
Showing posts with label church. Show all posts
Sunday, March 29, 2009
Sunday, March 15, 2009
Bye, Miss Great Big!
Great Big Nanny came on Wednesday, and left this morning. We were SO sad to see her go...
JT asked for 'cookie' a few times today... And he's referring to her. So, he calls her Cookie, and Audrey calls her Great Big Nanny - or 'Miss Great Big'. If you know my grandmother, you see the humor in this. She's roughly 5'2", and maybe 100 lbs. Seriously, there is nothing great big about her (except her personality)!
So, we're on our own... We will miss her a whole bunch... But I have a feeling she'll be back soon. She left a bag full of shoes and clothes at our house (lol, now I know exactly where I get it from).
As far as the Duzan fam... JT starts school tomorrow! I am going crazy... But I know he will like it. At least for the most part ;) And I need some time alone with my Audrey... She sometimes gets the rough end of the deal being the sister of a high energy autistic boy... But she is so sweet. I just want her to know how loved and important she is (JT, too, but he seems to know that very well lately, lol).
The Hubs's store has been doing some crazy awesome things, and he is loving his job. Dillard's is giving them a little more freedom to help clear old merchandise, and everyone knows that The Hubs loves coming up with 'fun' ideas - and he gets SO excited! It's great to see him so pumped up about work, and I know that helps his employees and the company in general to have someone who really is excited about what he does.
I met with my pastor (Pastor Carol) this week, and really had a great discussion with her. She is such a sweet person... It just solidified my decision that this is the church for us. I can't say enough about Emmanuel Presbyterian - the people are wonderful, the message is kind and helpful, and overall people just want to be better and do better in God's eyes. The best church I have ever attended by far.
I am dealing with Bob better every day... I have realized that in my life, I have faced plenty of challenges. Every time I fall, God catches me. Even when I may not realize it, God is always there. It is SO hard for me to realize I have no control... But truly, in life, we don't have control over - well, hardly anything. I saw a sign on a church on the way here that says 'Life is 10% what you make it and 90% how you take it.' This is SO true. I cannot control Bob, my insurance company, my doctors or anything else. I can control how I react to this situation and what I do with myself. I choose to believe that God is in the details... Somewhere. I have a hard time closing my eyes and waiting for God's safety net... 'Let go and let God' is not easy. But I know I will be okay - it is just going to have to play out the way it's meant to play out.
So, all in all, we are doing fantastic. We are happy, busy and exhausted... A wonderful combination :-)
I hope that everyone is doing well...
JT asked for 'cookie' a few times today... And he's referring to her. So, he calls her Cookie, and Audrey calls her Great Big Nanny - or 'Miss Great Big'. If you know my grandmother, you see the humor in this. She's roughly 5'2", and maybe 100 lbs. Seriously, there is nothing great big about her (except her personality)!
So, we're on our own... We will miss her a whole bunch... But I have a feeling she'll be back soon. She left a bag full of shoes and clothes at our house (lol, now I know exactly where I get it from).
As far as the Duzan fam... JT starts school tomorrow! I am going crazy... But I know he will like it. At least for the most part ;) And I need some time alone with my Audrey... She sometimes gets the rough end of the deal being the sister of a high energy autistic boy... But she is so sweet. I just want her to know how loved and important she is (JT, too, but he seems to know that very well lately, lol).
The Hubs's store has been doing some crazy awesome things, and he is loving his job. Dillard's is giving them a little more freedom to help clear old merchandise, and everyone knows that The Hubs loves coming up with 'fun' ideas - and he gets SO excited! It's great to see him so pumped up about work, and I know that helps his employees and the company in general to have someone who really is excited about what he does.
I met with my pastor (Pastor Carol) this week, and really had a great discussion with her. She is such a sweet person... It just solidified my decision that this is the church for us. I can't say enough about Emmanuel Presbyterian - the people are wonderful, the message is kind and helpful, and overall people just want to be better and do better in God's eyes. The best church I have ever attended by far.
I am dealing with Bob better every day... I have realized that in my life, I have faced plenty of challenges. Every time I fall, God catches me. Even when I may not realize it, God is always there. It is SO hard for me to realize I have no control... But truly, in life, we don't have control over - well, hardly anything. I saw a sign on a church on the way here that says 'Life is 10% what you make it and 90% how you take it.' This is SO true. I cannot control Bob, my insurance company, my doctors or anything else. I can control how I react to this situation and what I do with myself. I choose to believe that God is in the details... Somewhere. I have a hard time closing my eyes and waiting for God's safety net... 'Let go and let God' is not easy. But I know I will be okay - it is just going to have to play out the way it's meant to play out.
So, all in all, we are doing fantastic. We are happy, busy and exhausted... A wonderful combination :-)
I hope that everyone is doing well...
Tuesday, February 17, 2009
Wow!
Sorry for the delay in posts... We got rid of our internet connection at home (dial up was costing us $50 a month!!! and that's just rediculous... In the podunks, there is no DSL, and the phone company rips you knowing that dial up is your only option...), so coming to the library is my only chance to update... I will be more consistent now!
Latest news...
I found out I've met my first year max on my insurance. Because we had a 5 month lapse in coverage (between when I resigned and the next 'open enrollment' - insurance costs $260 A WEEK at hubby's job - it's through Great West - which is now Cigna - if anyone wants to barrage them with the rediculousness of the price), my personal max for year 1 was $25,000. Because of my two surgeries and multiple ER and doctor visits, I'm SOL until June 1. So, me and 'Bob' (yes, I gave my tumor a name...) are going to be thisclose. My doctor is working on finding something to help me, since she thinks it needs to be removed before then due to its rapid growth (duh) and nerve involvement. Not only is it growing (which means that something is going on that is not totally benign - although not necessarily cancerous yet), but the bigger it is the more they have to screw with my nerve - and that means more problems both short and long term with function.
I do have an appointment at the Vanderbilt Ingram Cancer Center with Dr. Kyle Weaver on February 24. I am looking forward to meeting him - hopefully he will have the experience necessary to do the surgery (even if it is in June, we can set it up and have everything ready to go... I'm paying out of pocket, but c'est la vie...). He might have other resources to help me get the surgery done if he believes it has to be done... Or, I would feel a lot better if he said it could wait in his medical opinion, and he would just set it up for June... Either way, I need to do this appointment. I almost peed my pants when I opened up a letter welcoming me to the Cancer Center, but I'm over it now... Mostly ;-)
JT is talking like CRAZY! I'm about to update his page too (see top right corner), so check it out to see his latest progress. Amazing!
The Hubs is off for the week, but due to the insurance issue (I maxxed the last week of December... So EVERYTHING I've had done with Bob is out of pocket... 3 GP appts, 2 ortho appts, 1 gen surgeon appt, 1 neurosurgeon appt, ultrasound, MRI and blood work) we are staying put... We can't really afford to go anywhere right now.
We found a church we really love. It's fairly close to our house (closer than most things... We don't really live 'close' to anything). I love the pastor, the people, and how informal it is. The people there are wonderful... And for the first time, going to church isn't about making me feel guilty about what I have done... But learning how to be a better person from now on. It's a wonderful experience. Never thought I'd look forward to church, but I honestly do!
That's about it for now.. Audrey is doing fantastic (as usual). Such a sweet little girl. She had a hearing test, and she passed with flying colors. The tech noted that 'when she pays attention' she was awesome. How my daughter got distracted in a soundproof booth is beyond me... But, have I mentioned I have ADD? Yeah, she's probably going to come by that one naturally... At least it's easy to manage - she'll just have to find her own 'The Hubs' to marry later in life to balance her out!
Love to all!
Latest news...
I found out I've met my first year max on my insurance. Because we had a 5 month lapse in coverage (between when I resigned and the next 'open enrollment' - insurance costs $260 A WEEK at hubby's job - it's through Great West - which is now Cigna - if anyone wants to barrage them with the rediculousness of the price), my personal max for year 1 was $25,000. Because of my two surgeries and multiple ER and doctor visits, I'm SOL until June 1. So, me and 'Bob' (yes, I gave my tumor a name...) are going to be thisclose. My doctor is working on finding something to help me, since she thinks it needs to be removed before then due to its rapid growth (duh) and nerve involvement. Not only is it growing (which means that something is going on that is not totally benign - although not necessarily cancerous yet), but the bigger it is the more they have to screw with my nerve - and that means more problems both short and long term with function.
I do have an appointment at the Vanderbilt Ingram Cancer Center with Dr. Kyle Weaver on February 24. I am looking forward to meeting him - hopefully he will have the experience necessary to do the surgery (even if it is in June, we can set it up and have everything ready to go... I'm paying out of pocket, but c'est la vie...). He might have other resources to help me get the surgery done if he believes it has to be done... Or, I would feel a lot better if he said it could wait in his medical opinion, and he would just set it up for June... Either way, I need to do this appointment. I almost peed my pants when I opened up a letter welcoming me to the Cancer Center, but I'm over it now... Mostly ;-)
JT is talking like CRAZY! I'm about to update his page too (see top right corner), so check it out to see his latest progress. Amazing!
The Hubs is off for the week, but due to the insurance issue (I maxxed the last week of December... So EVERYTHING I've had done with Bob is out of pocket... 3 GP appts, 2 ortho appts, 1 gen surgeon appt, 1 neurosurgeon appt, ultrasound, MRI and blood work) we are staying put... We can't really afford to go anywhere right now.
We found a church we really love. It's fairly close to our house (closer than most things... We don't really live 'close' to anything). I love the pastor, the people, and how informal it is. The people there are wonderful... And for the first time, going to church isn't about making me feel guilty about what I have done... But learning how to be a better person from now on. It's a wonderful experience. Never thought I'd look forward to church, but I honestly do!
That's about it for now.. Audrey is doing fantastic (as usual). Such a sweet little girl. She had a hearing test, and she passed with flying colors. The tech noted that 'when she pays attention' she was awesome. How my daughter got distracted in a soundproof booth is beyond me... But, have I mentioned I have ADD? Yeah, she's probably going to come by that one naturally... At least it's easy to manage - she'll just have to find her own 'The Hubs' to marry later in life to balance her out!
Love to all!
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