Also, remember the real meaning of Memorial Day. Thank you to all of our military personnel - past and present. May God bless you and your families and keep you forever safe. You are true heroes.
Life with a gifted child, a child with autism (who is super smart, too) and a whole lot of craziness :)
Monday, May 25, 2009
7 years!
Sunday, May 24, 2009
Saturday, May 23, 2009
Counting Down...
Days 'til I see my neurologist... 17.
Days 'til I have surgery... 26.
These have been the longest 6 months of my life. And its almost over!
Don't you know the insurance company is going to poop their pants when they see my June totals! Surgery will likely be 6-digits, and my max out of pocket is 7 grand. Eat it and like it Great-West/Cigna!!!!!
Wednesday, May 20, 2009
Brushing
Its called brushing therapy, and its kind of a deep pressure brushing with this special brush (pictured). The input from brushing actually calms JT down.
I gotta be honest... I love the OT, but I thought this was just a bunch of phooey... Until I started doing it at home.
JT started kissing us the week after brushing was started. He likes it, too (I don't blame him, it feels pretty good).
Who knows how long it will be effective for... But I am glad I was wrong! Sweet!
JT is done with the regular school year. We all went to his ice cream sundae party yesterday for his last day of school. He got a sweet award - for "Making me smile every day!". How precious! ESY is the 2-3 week of June and then again in July.
Oooo - and Bob's gone 4 weeks from tomorrow!
YAY!!!
Tuesday, May 12, 2009
Wow!
I am still in shock that in our wonderful country, health care is not guaranteed to those who need it. I'm even paying for it, and not getting it. Private health insurance companies are out of control, and we, as Americans need to make sure that it stops.
Here are some crazy thoughts for you:
Your medical tests depend on approval from a non-medical person based solely on their (non-medical school) judgement.
They don't know you, your doctor does, but their opinion determines what you can or can't have done.
In order to get a medical doctor to review a rejection, you have to request it thru the insurance company (and they don't have to do it).
Insurance companies can write anything in their clauses (such as my case - a first year max even though none were pre-existing conditions) and you don't have a damn thing you can do to fight it.
To them, you are a number. It's all about their bottom line. There is no way they can be working for you AND trying to make a profit. It doesn't make sense. They have a HUGE conflict of interest, and you will ALWAYS lose to them making more money. They are a business.
As soon as I am recovered from all my medical drama, I am going to start volunteering for organizations interested in health care (specifically insurance) reform or complete overhaul. It is rediculous that this is what we accept. Did you know that America is one of the only developed countries in the world where health insurance is NOT guaranteed? We lived in England for two years... And we used the health care there. I didn't see a difference. Private health care wants to scare us all into thinking we won't receive care if we turn it over to the government... But of course they do... That's where they make their money!
Anyway... Just thought I'd share some of the rediculous discoveries I've made during my time with Bob. I hope you learned something ;)
Love to all!
Sunday, May 10, 2009
Happy Mother's Day!
Thank you to my own mom and stepmom. How lucky was I to have not one but TWO awesome moms!?!
Happy Mother's Day!
Here's the daisy bouquet I got (planted by Audrey and me last year, and they picked them for me today!)
Saturday, May 9, 2009
Monkey's Treehouse Fun!
Friday, May 8, 2009
Tuesday, May 5, 2009
Wow... This is Amazing
If you don't, READ THIS.
This is exactly what it feels like. Exactly. Beautiful.
http://jesswilson.wordpress.com/2009/05/01/welcome-to-the-club/
Friday, May 1, 2009
Yay for Distractions!
I am now down to 7 weeks (a little less, it was 7 weeks yesterday) until the tumor is gone. I am so ready to get this sucker out...
JT is making incredible progress at school still... His teachers stop me at least once a week to tell me they see him doing something - playskills, language, etc - that he wasn't doing the week before. What an awesome, awesome feeling!!!
I hope everything is going well for everyone!